March 2012
179 posts
mykalcooper:
Getting my things together for an operation tomorrow. I have had way too many surgerys because of my crohns and each time I still get worried about them. Fingers crossed by this time tomorrow I should be out of hospital and back home, I hope this happens as I dont want to be stuck in hospital on Friday as that would mean missing my sons first birthday party. Sorrt for the rant…
February 2012
177 posts
Crohn's post..
carynolaflove:
As of yesterday, i’m down to 10mg of prednisone. But my body’s feeling it. I hate the first 3 days after tapering down my dose. My intestines hurt. My body hates me. I will never sleep. I’m surely going to die tonight. Damn you crohn’s.
Hey guys, guess what
We have 400 followers(excluding moderators)
YAY us!
xoxo Nicole
Clothes and Bloating - Help!
crohnsandarthritis:
We’ve discussed it before, fellow Crohn’s/UC ladies! Loose shirts, dresses, and tunic tops paired with leggings are your favorites for bloating and/or stomach ache days.
But where do you get them?
I have trouble finding long enough, loose enough shirts (tank tops preferably, I live in Florida), loose dresses, and plain tunic tops.
Where do you shop? Target? Kohls? Forever...
Food anxieties? →
ihaveuc:
I don’t know how much this relates to anyone else, but when I developed IBD, I became extremely intolerant to lactose. I can’t eat a bread crumb with milk. I suppose I could, but something like meatballs, or muffins, places where you least expect milk or butter (even margaringes!), make me ill for…
2 tags
Adventures in Au Pairing, Or Why I Struggle to...
Today my youngest child convinced her mother that she was too sick to go to school. We just moved from New York to Toronto, and yesterday was their first day at their new school. She complained of having a stomachache, and just wanting to sleep. Her forehead was hot, so her mother thought maybe she was feverish.
So instead of getting my blissful six hours to do my own thing with the kiddies at...
When should we do our next live chat?
What are you facing a lot of and need a group to talk it out with?
Is there an event coming up that you don’t know how to deal with?
Weight gain/lose and body image issues.
What medications are right for you?
We will be covering this and more on our next chat(This should be read in my amazing announcer voice(if you don’t know what that is, join a chat))
xoxo Nicole
I don't know what to do. →
seriouscircus:
I start my spring semester on monday and last night I went on rate my professor, and it said that my psych professor doesn’t allow anyone to go to the bathroom during class.
I have a note from my doctor from September and it wasn’t enough (not detailed enough) for an accommodation. And I…
Hospital Trauma! →
rupindah:
I was thinking about this today.
There are some things that I experienced in the hospital that have traumatized me for life. Examples:
a) back pain. The first two nights I had my stoma, it blocked, and I had horrific back pain. Now when I get it I have flash backs and I begin to cry and have…
It would be amazing for your help. →
sarahbiehl:
All you guys know how terrible these past few years have been for my family. My dad has missed so much work because of my mom. She now needs full-time care, so we are completely broke. We can no longer afford our home. We have tried everything from contacting the mortgage company to contacting…
How Chronic Disease affects the whole family. →
agirlwithguts:
Yesterday on my facebook page I asked you if you ever felt like a bother for your family because you are sick. I think almost everyone said YES.
The truth is, being sick affects the whole family. When you are diagnosed it’s like your entire family is diagnosed along with you. It’s not hard to…
Go to local doctor for URI, doctors erase all of...
frenchlellama:
6 tags
I just got back from my yearly GI check up
No colonoscopy for me until 2013!!
That’s about it for the news though. I’m doing well on Remicade and am not experiencing any stomach cramps or joint pain so we’re just gonna stick with that every 8 weeks.
-Stewart
4 tags
IBD Strong Twitter?
ibdstrong:
I’m thinking of making a Twitter to accompany this blog.
1. Is this a good idea?
2. Would any of you guys follow me/promote the page once it was up and running?
Thanks in advance for the input. Hope you’re all doing okay :)
EDIT: Twitter is now up and running. Click here! *2/18/12
4 tags
I feel like I'm going to be sick...
I often get diarrhea right before my period. Since my period is still slightly irregular (every 21 to 24 days), I don’t always know if it’s a Crohn’s symptom, a reaction to something I ate, or my period. Stupid body.
Bisous, Brita
lackluster-epithymy:
I hate it when I can’t tell if it’s my period coming on or Crohn’s cramps…
gooey-butter-cakes asked: Thank you for being here.
2 tags
That Girl J-Sto: Dear Crohn's Disease →
We’re here for you. Many of us have been through the same thing. Bisous, Brita
thatgirljsto14:
First off, what did I do to deserve this? I’ve lost almost all of my friends because of you. No one invites me places because they didn’t know if I would feel like going without even asking me. Or for the really crappy ignorance that came about when someone so misspoke to the point of...
You know you have Crohn's When...
wadeszworld:
Ensure becomes your beverage of choice.
Crohn's Restaurant →
wadeszworld:
This idea has weighed heavily on my mind so please read. I am tired of going out to eat with friends and literally only being able to order the same items on the menu. I would love it for one day a restaurant to be built where they have Crohn’s friendly food. Can you imagine that? Going to a place…
danaportwood:
Please send some good thoughts to the students, victims, and their families who were affected by this morning’s shooting in Chardon. Ohio. They just released that the gunman turned himself in, but one of the five students who got shot passed away.
You know you have Crohn's Disease When...
wadeszworld:
You know more about treatment options than your GI does.
You know you have Crohn's when ...
kla-yeayouknow:
you can only make plans a few hours ahead of time, and even then you still have to cancel half the time because of constantly running to the bathroom
New guide to who really shouldn't eat gluten →
lifewithautoimmune:
You’ve got abdominal pains, bloating, fatigue and foggy thinking. You feel worse after eating wheat or other foods with gluten, and better when you avoid them. Is it a wheat allergy, celiac disease or the power of suggestion, given all the buzz around gluten-free diets?
2 tags
“For the chronically ill, details are all. To cope with chronic illness means to...”
– Arthur Kleinman, The Illness Narratives (via shanghailil)
You Know You Have Crohn's When...
wadeszworld:
You Wake Up and Your Back is Soaking Wet.
Ally's Law →
wadeszworld:
I just realized that Ally’s Law is not enacted in Massachusetts (where I live). I also found out that it is only enacted in 12 states. That is really sad for everyone else like me who has IBD and does not live in one of those states. I am going to make it my mission to make sure I speak out in…
A life of mystery: You know what sucks? →
you-cant-go-home:
Being sick. Being abandoned. Being replaced. I know many people who know me in real life follow me. I also know they are decent enough not to say anything, and so I’m ranting. It’s 4:45am, I’m drunk, I’m sad, I’m angry. I’m so tired. Tired of my sickness ruining everything good that happens….
My body attacking my digestive track is quite...
Tumblr bans blogs promoting anorexia, bulimia and... →
daniperry:
Tumblr bans blogs promoting anorexia, bulimia and other self-harm
msnbc:
An announcement on the official Tumblr staff blog explains that the decision to revise the service’s content policy is not being taken lightly as its staff is “deeply committed to supporting…
Since we are so against it here - Thank you Tumblr!!!
8 tags
'Like' us on Facebook →
When we get to 100 likes on Facebook(along with 400 followers here), I am going to do a prank/stunt/stupid idea of your choosing.
xoxo Nicole
PS There is going to be a video of me doing it for all eternity so this better be goo!
theworldinyou:
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Ow.
crohnsandarthritis:
Humira. Ouch.
Bruise. Pain at injection site. Woozy feeling. Tired. Sore.
I know that it’s going to help me (it already is!), but I don’t enjoy feeling like complete and utter shit for a day and a half after I do my injection.
Read More
Almost had an epic fail with the Humira shot and... →
talesofamisfit:
Almost had an epic fail with the Humira shot and nearly wussed out. But I did it. I was still preparing myself mentally when I twitched and hit the trigger but hey, whatever gets the job done. I’m just glad it wasn’t like last time and I don’t get any in because I hit the button too soon and just…
Maggie's Youtube Channel →
ibdstrong:
Check out Maggie’s awesome channel! She posts super helpful videos about IBD, especially for people with ostomies :)
“I’m really afraid to feel happy because it never lasts.”
– Andy Warhol. (via cavum)
You know you have Crohn's when...
you think about dating a guy/girl because they give really good massages.