it’s that time of year where I reapply for hospital financial aid so I don’t have to pay for the hospital room for my infusions
the prepaid envelope they sent me hardly holds the forms and won’t close properly
I’m not mailing it in because I have an infusion tomorrow but it would really suck if I did actually have to mail it in
and prednisone isn’t even one of the cool steroids
I can’t break home run records or get big muscles and fight crime
instead I get rage-weepy and eat everything in sight
that makes for a terrible superhero
Welp, I just learned a lesson.
I haven’t seen my GI in about a year so I figured I would get a general check up appointment.
Turns out the next appointment he’s open is May 9th.
The lesson? Don’t want to make an appointment, even if you’re not in a hurry to see your GI.
The semester began last week for me and with the beginning of the semester comes new teachers.
I like to let my teachers know that I have Crohn’s disease and that I may end up missing a day of class or ditching out for a few minutes if I have to use the bathroom.
I have three classes on campus this semester and the first two went like normal. “Let me know if you need to miss class or just walk out if you need to.” Etc.
After my third class I went up to my teacher and told her I have Crohn’s. The first thing out of my teacher’s mouth is “What are you doing about probiotics?”
I didn’t have an answer and was nearly speechless.
First off I had never been asked what I’m doing about something I had never heard of before. Second I was really thrown off because it felt like I was being told how to care for my disease, a disease I’ve been dealing with and managing for over 12 years now.
I ended up just telling her that I would look into them just to get away from the subject and leave.
I’m sure she meant no harm and just wanted to help, but with how insistent she was I was slightly uncomfortable.
Suggesting something to someone dealing with a chronic illness if fine if they ask for a suggestion.
Suggesting something to someone informing you of their chronic illness so you are aware of their situation, especially when they are in remission, can be off putting and insulting. Please think before you speak.
THIS Crohnie, right here.
I turn 26 in June, so buh-bye to my parents’ health insurance. My full-time job is for a tiny start-up company, so no benefits there.
But as soon as my background check clears, I will be working 15ish hours a week at JCPenney, one of the few companies that offers limited health benefits to part-time employees. Woohoo!!!!!!!!
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Meet someone with same condition as you. New best friend.”]
— Tracee Ellis Ross (via simply-quotes)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Blogging. From the toilet.”]
December 18th, 2012
To whom it my concern,
My name is Natalie Jauretche and I am writing this letter in regards of filing an expedited grievance policy and formal complaint against Dr. Pandora Lee of Diablo Valley Primary Care.
Not going to lie, the first portion of this letter I thought this was just another attention-seeking wold-crier. Read until the end and see if you agree with Natalie.