Last Friday, December 14, 2012, as I’m assuming all of us know, Sandy Hook Elementary in Newtown, CT was attacked by a sole gunman who took the lives of 20 students ages 6 &7, as well as 6 faculty members, and the shooter’s own mother. While the majority of the country mourned, a group titled The Westboro Baptist Church, known for their protests in favor of some of the country’s biggest tragedies, responded by saying they were planning on protesting at the wakes and funerals of the victims. America responded, and although they reportedly did not attend today, hundreds of Newtown firefighters, policemen, citizens, as well as bikers, Anonymous, New Englanders, and Americans alike got together to create a human wall to protect mourners against WBC’s hateful presence. In other words, today dozens of groups of different people stood together against one evil.
This amazing act of camaraderie has inspired me, as well as many other Americans to stand up against the WBC once and for all. You can argue that this will make the problem worse, and that they just want attention, but if we can get the government to recognize them as a hate group, we will be that much closer to stopping them from hurting anyone else ever again. There are already enough signatures on this petition for the White House to review it, but the more signatures there are, the bigger stand we will make. It takes two seconds to make an account and be apart of a movement against evil.
Reblog this and get everyone you know involved.
(Source: nyctophobia, via selenarox)
Living with a chronic disease
This video details living with Irritable Bowel Syndrome specifically which is very similar to Crohn’s disease, which I have.
I’m very open with my disease but I know I don’t talk about it a ton because I am in remission.
If you ever have any questions about please do not hesitate to ask. I will happily answer any questions.
This video also details many fine points about living with a chronic disease in general, so may very well apply to many of you.
This is my little brother Alex, he is 13 years old.
He was born with 5 holes in his heart, at the time the doctors didn’t realise that, they only told us there was one, so when they went to fix it his body couldn’t handle it and he had a stroke, he was legally dead for 5 minutes. the doctors told us that he would be fine and that the stroke wouldn’t affect him. they were wrong.
Alex is now developmentally delayed, it took him till he was 5 to learn how to stand and until he was 7 to walk, he still cannot talk, go to the toilet by himself, dress himself, feed himself, do anything himself really.
When he was 5 we found out that he had severe scoliosis which means that his spine was slowly twisting and that if we didn’t do anything it would eventually crush all his internal organs and he would die. We quickly got him wearing all different kinds of braces to help prevent his spine from twisting anymore he wore them for 365 days a year for 6 years. We then found out that they weren’t working.
About 6 months after hearing this news we learnt that there was a brand new procedure being trialled which included putting a metal rod in his spine and over time slowly lengthening it and would hopefully eventually straighten up his spine. we were over joyed with the news that maybe one thing in Alex’s life would go right. when they were doing the surgery they found that he had very soft bones unlike anything they had ever seen before however they went ahead with the surgery. it took alex 8 hours to wake up after the surgery and during those hours it was the most emotionally stressful time i had ever experienced, the doctors told us that he might not wake up
Fortunately he did. The surgery was a success and after a couple weeks in hospital our little man returned home.
We thought everything was going to be good now thats until we found out the he has to have another heart surgery because he is out growing the heart he already has. then about two weeks ago we found out that the metal rod in his spine was failing and that it was slowly undoing itself to the point where it could completely come out and pierce his skin.
Alex is having emergency surgery tomorrow and the doctors don’t know whats going to happen, they dont know how to help him anymore, they are slowly giving up just like all his others doctors have
to tell you the truth this all really scares me, the thought of loosing my little brother, my bestfriend, my hero i cant even bare to think about it
and still with all this going on his is little life, he still continues to be the happiest person i have ever met, the person who makes friends with anyone and inspires everyone he has ever met. he has the ability to make anyone fall in love with him with just one look
I love you more than the world Alex and i pray that everything will go okay tomorrow. <3
(Source: fluerly)
Her mum posted this on The Ellen DeGeneres Show’s wall
it made me smile
Awesome!
(via lifewithautoimmune)
crohniclesofcourtney: Did u know one of the generics for entocort is the brand name? generic makers: Mylan Pharma. - pink pills Par Pharma.- half white The version made by Par is an "authorized generic," meaning that it is the actual brand-name medication, repackaged and sold under a generic name. It is exactly the same as Entocort EC in every way (it's even made by AstraZeneca and still has the brand name on the pill). Sometimes u can request a specific generic. Hope this helps! I got the par one & it works!
THANKS!!! That helps since I am going to have to get the script filled again.
xoxo Nicole
TODAY
Today had it’s VERY extreme good and bad news
First, I got my insurance company to agree upon giving me the name-brand Entocort for the generic price, since the generic will throw me into a much worse flare than I already am in.
Second, I found out that I NEED to find health insurance since my dad got laid off and I only have until March. Any help would be greatly appreciated.
xoxo Nicole
PS ?
![chronicillnesscat:
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Flare makes you miss school. Missing school makes you stressed. Stress makes you flare. Repeat.”]
This has probably been done already, but I couldn’t remember.](http://24.media.tumblr.com/tumblr_mefda5IVRd1qi36g3o1_400.jpg)
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Flare makes you miss school. Missing school makes you stressed. Stress makes you flare. Repeat.”]
This has probably been done already, but I couldn’t remember.
